Represented by Brent Street Agency eleven year old Logan Reberger currently stars in the hit ABC Me series ‘Hardball’. Logan was born with a genetic mutation in his TTN Gene (known as the Titan gene). This mutation causes a muscle condition called Multiminicore Myopathy that results in extreme muscle weakness, respiratory issues and scoliosis. He has endured multiple hospital visits in his short life.
Logan’s mother Donna shares her experience as a parent.
“Logan spent time in ICU on life support just before his 3rd birthday after contracting pneumonia. This was a hard time cause he had been flown from Canberra where we lived at the time. He suffered two pneumothorax (holes in the lungs) and was in an induced coma for 6 days. The unknown was horrible but our little fighter didn’t let it beat him and we can all see the story of his accomplishment from there. At the end of the day we look at hospital from a positive aspect, Logan has always left the hospital better than he was when he went in. We are super proud of how he handles his visits.”
Despite all these challenges Logan sailed through the grueling 13 week Hardball shoot like a champion earning the respect and admiration of cast and crew for his humour, resilience and talent. Our young super hero is also paving the way for actors with disabilities as the industry strives to become more diverse and inclusive.
Hardball is currently showing on iview – https://iview.abc.net.au/show/hardball
At seven months of age following an emergency bowel operation Ruby was diagnosed with an extremely rare disease called Inflammatory Myofibroblastic Tumours in her stomach & liver. Over the next three years she underwent more surgery and drug therapy which lowered her white cell count and made her highly vulnerable to infection. Multiple hospital visits often spent in isolation plus regular visits for ultrasounds, PET scans, blood work continue to today.
Despite this rough start Ruby has excelled to become one of the agency’s most sought-after young actors from Brent Street Agency. Ruby had a supporting role in in the feature film ‘Downunder’ and recently appeared in the Missing Persons Week campaign. Besides lead roles in several short films Ruby also appeared on stage as Young Greta in Belvoir’s production of ‘Girl Asleep’.
Ruby’s mother Tamara describes the experience of having a sick child in hospital.
“It was frightening, emotionally draining, exhausting and logistically challenging especially when you have a family at home that needs you too.”
Surprisingly, despite hundreds of injections Ruby doesn’t mind needles. She even enjoyed the food! Although she missed her friends and family Ruby loved the Clown Doctors, joining in their silly songs, telling jokes and helping her forget why she was in hospital.
Indie was born three months premature weighing only 1 kg. She needed a ventilator to breathe and suffered serious brain bleeds and several issues that resulted from being born prematurely.
When Indie is asked how many times she has been to hospital she replies, “eight maybe?” The truth is Indie has had multiple trips to hospital and many operations and procedures over the years including spinal surgery where she had to lie flat on her back for three days without moving. At one stage Indie had to be kept awake for 24 hours in a brain activity study. A cruel but necessary exercise for a young child who just wanted to sleep.
I asked Indie’s Mum, Davina, about her experience with the Clown Doctors and how they helped during these times.
“I used to nurse at the hospital and the Clown Doctors would even put a smile on the staff’s faces. They must absorb an enormous amount of grief in a career where you have “to be on” all the time. It must be exhausting. I want to say a great big thank you to all of them.”
Despite all the challenges and on-going treatment Indie is thriving. At seven years of age she is a keen dance student at Brent Street and is also represented by Brent Street Agency. Already Indie has appeared in commercials for Woolworths and Energy Australia and was recently chosen to speak in front of the school for the Anzac Day ceremony.
Brent Street is proud to be supporting the Humour Foundation and the Clown Doctors this month and we encourage you to show your support. Cash donations can either be made in the foyer or via the link below –